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Step 1
Involve Your Entire Family in the Decision:
Be sure to discuss with your family and sick child that you are considering a new treatment. Depending on the age and maturity level, your child may or may not be able to understand the medical terms, or why he is experiencing such pain. It's hard for kids to comprehend that the treatments are meant to make them well. Usually older kids are more able to understand the meaning of disease and the treatment aspect of it; and some have experienced a loved ones death, so they can grasp what that means. For younger kids, sometimes medical picture charts can help when explaining things such as tests ,treatments and pain levels. -
Step 2
Speak with Your Primary Care Physician For A Referral:
Your child's primary doctor will need to refer you for Pediatric Palliative Care services. During your meeting with the doctor ask for an update on the status of your child's illness and decide whether or not you desire curative treatments for your child such as CPR if his heart were to stop, or the use of a feeding tube if he was unable to eat. -
Step 3
Meet with The Pediatric Palliative Care Team:
Before meeting with the Pediatric Palliative Care team make a list of questions and concerns you may have regarding what to expect from their services. The care team is made up of experts in several different areas of health care such as doctors, pharmacists, social workers and therapists. You can expect the Pediatric Palliative Care team to communicate openly and honestly with you regarding your child's illness and care.















Comments
msmabry said
on 5/20/2009 Thanks for the article on how to receive pediatric palliative care. 5*
lkrause2 said
on 5/18/2009 This is much needed info for anyone with a child who is ill. Thank you.
athome said
on 5/17/2009 Pediatric Palliative Care what a sad subject, thanks for writing.
langleycornwell said
on 5/15/2009 Thanks for a good and sensitive article about a sad subject. Very good information, 5*s.
georgelarson said
on 5/11/2009 Good information for anyone who needs their pain managed and taken care of. Thanks.