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Step 1
Join a support group for families living with severe cerebral palsy. It is the only way to meet people who truly understand how you feel. Be sure to keep the people you connect with the most on speed dial so you can talk or email at any time. This will give you support during difficult days and help you cope better (see Resources below).
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Step 2
Face how you feel about the affects of severe cerebral palsy on your family (without guilt). This is key to your ability to cope with this condition. It’s normal to feel anger, frustration and resentment when you face a situation in your life that won’t go away. Cerebral palsy is not curable. So allow yourself to feel “appropriate” emotions. Just be sure to do it in a safe place away from the person affected by this condition or family members who may be hurt or disturbed by it.
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Step 3
Get financial assistance for the medical bills associated with severe cerebral palsy. Don’t let excessive pride keep you from getting help. Individuals with severe cerebral palsy require specialized care, so seek state assistance, family assistance and any other help that will lighten your financial load. A lighter financial load with reduce your level of stress and help you cope better.
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Step 4
Take breaks on a regular basis. This may sound unthinkable, but the reality is that you need a chance to take care of yourself. You also need fun time with other family members who may be overwhelmed with the situation. You will see that a day away or even a few hours will help rejuvenate you and help you cope better.
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Step 5
Enlist outside help for day to day chores. This help can deal directly with your child living with severe cerebral palsy or not. Your goal is to relieve household duties so that you don’t become overwhelmed. Ask friends, family, church and support group members. These people are the ones most likely willing to donate 30 minutes to an hour to support your life.
