How to Decide When Assistive Devices are Right for Children with Chronic Diseases

Children who have chronic muscle diseases often have trouble getting from one place to another. Their muscle weakness may fluctuate over time, making it difficult to walk one day and easier the next. Parents are faced with the challenge of when to buy products to help their children. Adding time to the daily routines can help with some issues, but other problems require bigger solutions. Which to choose depends greatly on the child's situation, but here are some tips to consider.

Difficulty: Moderate

Instructions

1. Jot down what your child is unable to do at certain times, along with when these problems tend to occur. Brainstorm how you might be able to fix these problems, whether with specific items or by modifying certain things.

2. Talk to your child's doctor or physical therapist to decide what types of devices will be helpful and which might negatively impact your child's general health and well-being. Introducing devices that provide too much help keep your child from becoming progressively and naturally more independent.

3. Try devices for shorter periods of time. If walking is a problem for longer distances, allow your child to use a stroller or wheelchair for a part of the time and try to walk for a bit.

4. Discuss with your child how he thinks he can get around specific obstacles during the day. It is often rewarding for him to feel more independent and in control.

5. Talk to other families about how they have handled particular situations.

6. Remember safety. Decide what problems your child faces that can lead to possibly dangerous situations, including falls.

Tips & Warnings

• Focus on what your child can do as much as possible. Invite friends over to join in whatever fun keeps your child involved.
• Always discuss the different assistive devices with your child's doctor or therapist to be sure everyone is in agreement.