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How to Talk to a Doctor About Cystic Fibrosis

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By eHow Contributing Writer
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If you've developed a wheezing, persistent phlegmatic cough that is accompanied by frequent respiratory infections and weight loss, you may need to talk to a doctor about cystic fibrosis. This genetic condition affects the lungs and the pancreas.

Difficulty: Moderate
Instructions

    Talk to Your Doctor About Cystic Fibrosis

  1. Step 1

    Research your family's medical history. Those with a family history of cystic fibrosis and other inherited conditions are much more likely to carry the gene and develop cystic fibrosis. The more closely related the relative who has cystic fibrosis, the greater chances you have of being a carrier.

  2. Step 2

    Learn all you can about cystic fibrosis before you talk to a doctor. You may be able to answer many of your questions on your own, this way you can save the important questions for your doctor. Visit the Cystic Fibrosis Foundation website or visit your local library to find out all you can about the condition (see Resources below).

  3. Step 3

    Talk to your family doctor about cystic fibrosis. Your family doctor is a great resource because she knows you, your medical history and your family. Talking to a doctor you know and trust can help you feel more relieved about your diagnosis or carrier status and is often very comforting.

  4. Step 4

    Talk to a cystic fibrosis specialist. Even though your family doctor can help assuage some of your most pressing fears, a genetic specialist in the field of CF spends her entire career dealing with the condition and staying abreast of the latest advances in treatment and research breakthroughs.

  5. Step 5

    Stay calm, relaxed and ask direct questions. While the fear of being a CF carrier is genuine, especially if you're pregnant, it is critical that you stay focused and rational in order to properly evaluate the information you'll receive when you talk to your doctor.

  6. Step 6

    Talk to your doctor about newborn screening if you are a pregnant carrier of CF but don't have the condition yourself. Newborn screening is critical because if the disease is caught early enough, proper treatment can improve health and even extend the life expectancy of the person.

Tips & Warnings
  • If you have a family history of cystic fibrosis, have been diagnosed with CF or are a pregnant carrier of the CF gene it can be highly beneficial to join a cystic fibrosis support group in your area. You can find a local chapter of the Cystic Fibrosis Foundation on the group's website (see Resources below).
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