How to Join a Colitis Support Group

Half a million Americans, young and old, live with the chronic disease ulcerative colitis. This disorder of the colon results in periodic episodes of intestinal inflammation and painful symptoms and has no cure. To live a fulfilling life amid this serious health issue, many patients turn to support groups. A group shares concerns, triumphs, remedies and information, providing hope and relief to those who must live with colitis.

Difficulty:

Moderate

Instructions

Things You'll Need

• Networking contacts for colitis advocacy and support
• Advice from your doctor

Find Your Support Group Niche

1. Assess your needs in a support group. Decide whether you have time for occasional online chats, regular group meetings or special events.

2. Set goals for your role in a support group. For instance, you may want to increase your knowledge about ulcerative colitis or learn how others have maintained remission.

3. Check with your local hospital to see if it sponsors IBD support groups or periodic educational seminars.

4. Look for local or national health fairs to attend. Watch the special events advertisements in your area. You can connect with IBD groups and learn about new treatments or research.

5. Join an online IBD chat group. Check the bulletin board listings sponsored by any large Internet service provider, or get a referral to one from your doctor.

6. Join the Crohn's and Colitis Foundation of America (see Resources below) and you'll be able to use its local support group system at no charge.

7. Contact a group facilitator and attend a couple of meetings to see if the group environment is for you.

8. Commit to a support group and become active in the area of your choice, from being a good listener to planning an annual fund raiser.

Tips & Warnings

• Ulcerative colitis and the related Crohn's disease are both part of the larger group called inflammatory bowel diseases (IBDs).

• You'll get the most out of a support group by attending or emailing regularly. You can count on others when they know they can count on you.

• Find your niche in any group you join. Use your organizational, creative or technical skills for events, newsletters or a group website.

• Some colitis group members may suffer from unrelated physical or mental health issues. Always discuss any advice they give you with your doctor.

• Do not use medication prescribed for another group member, even if she suffers from the same symptoms as you do.

Resources

• IBD support groups at Crohn's and Colitis Foundation of America.