How to Treat Pierre Robin Sequence

Pierre Robin sequence is a condition of unknown origin that is most likely related to several different genetic disorders. Pierre Robin sequence is identifiable for the abnormalities it causes the mouths, teeth and tongues of sufferers. Read on to learn more about how to treat Pierre Robin Sequence.

Instructions

Difficulty: Moderately Challenging

Things You’ll Need:

• Tracheostomy
• Support group
• Nasal tube
• Check-ups

1. Watch for the warning signs of Pierre Robin Sequence. The common signs are a receding chin and small mouth, a tongue that appears too large when compared to the mouth, a cleft palate, a small hole in the roof of the mouth and a jawbone that is set unusually far back.
2. Check for natal teeth if you have a family history of Pierre Robin Sequence. Natal teeth are teeth that are already present at birth.
3. Get a standard check-up with a doctor to diagnose Pierre Robin Sequence. It may also be helpful to talk to a specialist in genetic disorders after Pierre Robin Sequence has been diagnosed just to rule out the possibility of other genetic disorders.
4. Place infants with Pierre Robin Sequence face down, not on their backs. Because their jaws are set too far back in the throat and the tongue is over-sized, choking is a serious hazard faced by those with Pierre Robin Sequence. The most effective way to treat Pierre Robin Sequence is too keep the airway free from any possible obstructions at all times.
5. Treat difficult cases of Pierre Robin Sequence by having a doctor insert a tube into the airway. A doctor will insert a breathing tube through the nasal passage, behind the area where blockage may occur, to keep the airway open and breathing normal.
6. Talk to your doctor about surgery to treat the condition. In very serious cases, a doctor may need to perform a procedure called a tracheostomy to open the windpipe.
7. Monitor feeding time closely. Choking on food and taking liquid into the lungs are real dangers to those with the sequence. It can be dangerous for people with Pierre Robin Sequence to eat by themselves.
8. Seek out those with similar backgrounds and experiences. Talking to others who have been through what you are going through is an excellent way to manage stress and feel more confident in your daily life. You can find more information about Pierre Robin Sequence, as well as a list of support group resources, on the National Craniofacial Association website. See the Resources section below for a link.

Tips & Warnings

• Sometimes, the jaw will grow into a more normal size and choking problems can decrease.