How to Find Support From Others Who Have Parkinson's Disease

One in every 100 people today suffers from Parkinson's disease, a brain condition that affects the muscle system, causing difficulty in walking, coordination and speech. Seek support from others to help you cope with your own symptoms.

Instructions

Difficulty: Moderately Easy

Things You’ll Need:

• Physician Directories
• Medical Journals
• Internet Access
• Computers
• Fliers

1. Find a support group online. Do a keyword search or visit Web sites of national Parkinson's organizations that either provide support groups or offer links to other sites.
2. Ask your doctor for a referral to a local support group.
3. Ask a physical therapist or social worker if there are any group sessions held in your area for patients with similar problems. If these don't exist, suggest that he or she start such a group.
4. Ask lots of questions of other patients to pool personal experiences of the disease and understand the ramifications of recommended treatment options.
5. Realize that you are not alone. By talking to others who are going through similar experiences, you may feel better about your own condition.
6. Be candid with your feelings and frustrations. Remember that another group member may be able to relate to your situation and provide insight and wisdom.
7. Work to raise general awareness of this disease with the help of the group. Send information to your local newspaper, talk to other patients at hospitals and senior centers, and start a newsletter for other victims.
8. Post notices of your group meetings where other victims of Parkinson's disease may see them; at online bulletin boards, or in public areas at medical centers, pharmacies and hospitals.
9. Call [phone] to find a support group in your area through the American Parkinson's Disease Information Referral Center.

Tips & Warnings

• Remember that if the first group you try doesn't seem right for you, there are many other options out there.
• Consider starting a local support group. Call the American Parkinson's Disease Association at [phone] for more information.